Screening criteria: the need to deal with new developments and ethical issues in newborn metabolic screening
نویسندگان
چکیده
منابع مشابه
Ethical Issues in Newborn Screening
Newborn screening represents an important preventive public health program. Over the time, there were debates about the criteria for inclusion of some diseases in newborn screening. Discussions on the expansion of newborn screening programs focus on three aspects: informed consent, costs and evidence. The authors present data on the criteria that must meet newborn screening and different ethica...
متن کاملEthical and Regulatory Issues with Residual Newborn Screening Dried Bloodspots
After newborn screening is completed, most states retain leftover dried bloodspots. These dried bloodspots are stored for varying lengths of time among different state newborn screening programs. Dried bloodspots are a unique and valuable resource for the development of new newborn screening tests, quality assurance and biomedical research. Recent changes to the 2014 Newborn Screening Reauthori...
متن کاملNewborn screening: new developments, new dilemmas.
Scientific and technological advances are lending pressure to expand the scope of newborn screening. Whereas this has great potential for improving child health, it also challenges our current perception of such programmes. Standard newborn screening programmes are clearly justified by the fact that early detection and treatment of affected individuals avoids significant morbidity and mortality...
متن کاملNewborn screening by tandem mass spectrometry: ethical and social issues.
Emerging technologies like Tandem Mass Spectrometry (TMS) enable multiple tests on a single blood sample and allow the expansion of Newborn Screening (NBS) to include various metabolic diseases. Introducing TMS for NBS raises important social and ethical questions: what are the criteria for adding disorders to screening panels? What evidence justifies expansion of screening? How can equity in N...
متن کاملParental attitudes toward ethical and social issues surrounding the expansion of newborn screening using new technologies.
AIMS This study assessed parent knowledge of newborn screening (NBS) and parent attitudes toward NBS for untreatable conditions, NBS for late-onset disorders and informed consent in NBS. METHODS Seventeen qualitative focus groups were held in Alaska, California, Hawaii, and Washington with mothers of children 10 years old or younger. RESULTS Most participants did not recall receiving inform...
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ژورنال
عنوان ژورنال: Journal of Community Genetics
سال: 2012
ISSN: 1868-310X,1868-6001
DOI: 10.1007/s12687-012-0118-9